ALS WARRIOR POET
"Decision Must Be Instant - Commitment Must Be Total." (Click Here for Hope) -blazeman |
Information & Background Entry forms, updates and general information will be added here up until race day.
Please keep checking back for the latest...
When: May 13th, 2006 10:00 a.m.
An Entry Fee will help support our fight to end ALS
Contributions can be made out to: ALS-TDF
As many of you know, our students had the privilege of meeting a true hero, Jon “Blazeman” Blais, when he spoke to the eighth graders in December. Jon was diagnosed with ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig’s Disease, in May, 2005. ALS has no cure and no effective treatment. ALS is marked by a rapid loss of voluntary muscle control due to the death of motor neurons in the brain and spinal cord. The result is complete muscle paralysis, communication impairment, difficulty swallowing and breathing and eventual death. Following diagnosis, the average ALS patient survives 2 – 5 years.
Although plagued by early symptoms, Jon, an elite athlete, made it his mission to participate in the Ford Ironman Triathlon in Kona, Hawaii to raise awareness of ALS. Jon’s strength, determination and courage enabled him to successfully complete the race in just under 17 hours. He was the first man in history to complete the Ironman with ALS.
After watching the NBC film of the Ironman and listening to Jon’s story, the students decided that they had to do something to help this cause. They chose to hold a 5K Walk/Run which will be held on Saturday, May 13th in Coventry.
Needless to say, this is an enormous undertaking and we have heard through the students that some of the parents would like to get involved. On Thursday, March 9th at 7:00 PM we are having an informational meeting for parents that would like to hear more about this event. Jon will be present to answer any questions/concerns. All are invited and may choose to get involved at any level. All help is welcome!!
We look forward to seeing you...
We are asking for your assistance in promoting our first annual Blazeman 5k.
This race is in honor of a former teacher, Jon Blais who was diagnosed with ALS (Amyotrophic Lateral Sclerosis) more commonly known as Lou Gehrig's disease, on May 13th of last year. After being diagnosed he was determined to spread the word about ALS to raise money for some sort of treatment for the disease. This is because in the 70 years since Lou Gehrig's diagnosis there has only been one FDA approved drug that has failed to do little if anything for the symptoms. It is referred to as "diagnose and adios" Knowing that he only had 2-5 years left of his life Jon decided that his first step in raising awareness was going to be competing and finishing the Ford Ironman World Championship in Hawaii this past October. After hearing of his great accomplishment, it was unanimous: We needed to raise money for ALS research because we simply can not lose more great people like Jon to this motor-neuron disease.
This year on Saturday May 13, the one year anniversary of his diagnosis, Flat River Middle School will be hosting The Blazeman 5K. The purpose of this race is to raise awareness of the disease as well as raise money in Jon's search for a cure. All proceeds will go directly to the ALSTDF (ALS Therapy Development Foundation) a research facility based out of Cambridge, Massachusetts that funds research for the disease. Although in another 1-4 years, chances are Jon will no longer be with us, his voice will still be heard through this annual race among other fundraisers Jon has been involved in. We are asking for you to help us endorse this race so that we can help the ALSTDF fight the war on ALS. Any promotional assistance would be deeply appreciated, not just by Jon, but the upwards of 30,000 people who suffer from ALS. To learn more about Jon and his daily battle with ALS you can visit his website at www.ALSWarriorPoet.com. To visit the ALSTDF website log onto www.ALS.net.
Sincerely,
Students from Flat River Middle School
“Decision Must Be Instant… Commitment Must Be Total.”
-Blazeman

Sponsored By: AmeriFi Mortgage Corporation


1675 Flat River Road, Coventry, RI
$15 pre-registration fee on line at needtorace.com
$18 Mail-in Download Here
$20 fee after May 9th
Care of the Jon Blais Fund and sent to:
Vicki Norris-Karten
4 Lister Drive
Barrington, RI 02806
E-Mail: vnk@cox.net
All funds raised will be donated to the 
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Design By: Steven Feeney
Flat River Middle School, Coventry, RI
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Shawn Henderson
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