ALS Warrior PoetALS WARRIOR POET
-blazeman

"Those who truly battle every day of their lives to live with ALS, and want to continue to live to see a cure, and the PALS (People with ALS) who have fought gallantly in the past, are the 'Faces of Courage' that are represented on the ALS March of Faces Banner."
March Of Faces.org

Meet More Warrior Poets On Death Row...


ALS Warrior Poets: Helen, Blazeman, Russ, Along Side ALS Warrior: Jamie Heywood

"We are here for a reason... mind over matter."
My grandfather once said: "It's a great life if you don't weaken."
-Ken The Warrior Poet
Dave and Ken
ALS WARRIOR POETS:  Dave & Ken
Ken with his wife Lesa.
Ken with his wife Lesa.
Ken with his nephew Logan.
Ken with his nephew Logan.

Frank Campbell
Frank Campbell

"Yesterday is already a dream, and tomorrow is only a vision. But today, well lived, makes every yesterday a dream of happiness, and every tomorrow a vision of hope".

Rob Marshall
Hope Is...

Hope is waking up to a bright,sunny morning.
Hope is hearing the birds singing outside my window.
Hope is family and friends,loving and being loved.
Hope is reading about some new medical research.
Hope is people working together to make the impossible become a reality.
Hope is what keeps me fighting on.
Hope is all I have.

Rob Marshall
(Click to meet Rob)
John Bell

"To Show You the Meaning of Motor Neuron Disease,
I Am Going to be Photographed Until I Die."
John Bell
(Click to meet John)
To make a prairie it takes a clover and one bee
And revery.
The revery alone will do
If bees are few.

Emily Dickinson
Sean
Warrior Poet Sean Mucci

Jim Thew and his wife Kumiko

Forevermore…

The days have become numbered for me.
Soon I will be launched forever out to sea.
All I ask is those of you that would remember me.
Think of the fun times and laughs that we shared
Those are the memories I ask you to be spared.
That is the way I would like you to remember me.
Remember the happiness and all of the cheers.
Not the sadness and all those so many tears.
Understand that I lived life, now you must live yours.
But know I’m not gone but high above, there I’ll soar.
Watching over you, I will be there Forevermore...
John “J.J.” Bouma, Jr. has enjoyed traveling throughout his lifetime, but a trip planned in May in a 2006 Chevrolet Corvette from Grand Rapids, Mich., to Santa Monica, Calif., along the old Route 66 may prove to be unlike any other for this car buff and his traveling companions.

Car aficionado John "J.J." Bouma, Jr. prepares for his trip from the Midwest to the West Coast. Chairman of the board of directors of The Bouma Corp., a nationally-recognized commercial construction company, Bouma, 54, was diagnosed with ALS in September 2005 at The University of Michigan and Mayo Clinic. He has the bulbar form of ALS and speaks with the assistance of an augmentative communication device.

John “J.J.” Bouma, Jr.
Patrick O'Brien
My name is Patrick. Sometime during the fall of 2004, I noticed an involuntary shaking in my legs. For a long time the exact cause eluded definition.

On May 24th, 2005, however, I was officially diagnosed with Amyotrophic Lateral Sclerosis (also known as ALS or Lou Gehrig's disease), a terminal disease that results in the progressive degeneration of the nerves and muscles responsible for voluntary movement. It is a fatal and incurable disease. I was 30 years old.
Dorothy Arant         Jack Parker
Dorothy Arant                                                                         Jack Parker
Indestructable

Ben Byer, Director

Filmed on four continents with over 100 subjects, Indestructible is a first-person, feature length documentary film written and directed by Ben Byer, a 34 year-old filmmaker battling ALS, a neuro-degenerative disease that kills most of its victims within two to five years. Produced by ALS Film Fund in Chicago, Illinois, Indestructible was born out of the need to share the brutal, yet inspiring, reality of ALS, a devastating, mysterious and deadly disease.
"The strength itself toward the heights
is enough to fill a man's heart."
-Albert Camus

Faces & Places     I     II     III     IV     V     VI     VII
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