RIP Jon "Blazeman" Blais August 30, 1971 - May 27, 2007
He Leaves The World A Better Place Because He Was A Part Of It...

Obituary as it appeared in The Porvidence Journal
June 3rd, 2007

BLAIS, JONATHAN S., 35, of Seekonk Massachusetts, known to many as Blazeman, died Sunday, May 27, 2007 in Fort Myers, Florida of Amyotrophic Lateral Sclerosis.

A long time triathlete, he moved to San Diego 12 years ago to work with learning disabled and at risk students at the Aseltine School. Jon was diagnosed on May 2, 2005 and in 2 short years he became a powerful voice for ALS, using the sport he loved to help promote awareness and fundraising to find a cure for this horrific disease.

Jonathan was the son of Robert and Mary Ann (Lawson) Blais of Seekonk, brother of Jennifer Murphy, brother-in-law of Jason Murphy and loving uncle of Anna Leah Murphy, all of Ashford, Connecticut. He was the grandson of the late Eugene and Simone Blais and the late James and Catherine Lawson.

Jon graduated from Seekonk High School and Rhode Island College where he majored in special education. Besides his long time participation in triathlons he was an avid mountain climber and hiker and he took his love of the outdoors into his classroom where he inspired many special needs students to reach their potential.

In October 2005, five months after his diagnosis, he became the first ALS patient to race and finish the World Championship Ford Ironman Triathlon in Kona, Hawaii while being filmed by NBC Sports. Last year he returned to Hawaii to watch the race in his wheelchair as triathlete Brian Breen raced on Jon's behalf to continue the cause, finishing as Jon did the year before by rolling across the finish line. Jon was again followed by NBC Sports who won an Emmy for their coverage and dedicated this Emmy to Jon at the Sports Emmy Awards on May 3, 2007.

At the Inaugural Ford Ironman World Championship 70.3 in Clearwater, Florida the World Triathlon Corporation coveted his Ironman race number 179 for special athletes only. In February 2007, Jon was given the Competitor of the Year Award by Competitor Magazine in San Diego.

As he gave so much in his short life, after his death his brain and spinal cord were donated to the University of Maryland Brain and Tissue Bank for research. His body was cremated and his ashes will be spread in special places around the world.

A celebration of his life will be held later this summer. You can find out more about his extraordinary life by visiting his websites and, where athletes can join Team Blazeman to continue raising awareness and funds for ALS research and support for ALS patients. Donations in his memory can be made to The Jonathan S. Blais (Aka Blazeman) Memorial Scholarship Fund C/O Webster Bank, attn Jan Marshall, 741 Willet Avenue, Riverside , RI 02915 or to the Blazeman Foundation, P.O. Box 19292, Boulder, CO 80308.

Sunday, May 27th, 2007

Dear Friends, Jonathan passed away at approx 8:30 Sunday,May 27,2007.

He was a great son, brother, uncle and friend. We shall miss him more than you know, He lost this battle in hopes others may win the war.

Please keep up the fight that Jon started 2 yrs ago in his honor.

Mary Ann and Bob Blais

Monday, June 25th, 2007

Jim & Karen
Warrior Poet Jim Rebello

REBELLO, JAMES JR., 51, of Pawtucket passed away peacefully at home Saturday, June 23, 2007 after a courageous battle with ALS (Lou Gehrig's Disease) surrounded by his loving family and friends. He was the beloved husband of Karen (Carlson) Rebello, for 23 incredible years.

Jim's desire to be involved in his son's lives and activities as father and coach in various youth programs touched not only the lives of his sons but also the lives of many young people. He was involved with Pawtucket Youth Soccer Association for over 12 years as a coach and vice president, Jim was also a coach with the Darlington American Little League.

Jim's strong desire to help others with this disease led him to donate his brain and spinal cord to Massachusetts General to help further research in the fight for a cure for this terrible disease.

Published in The Providence Journal on 6/25/2007.

Friday, March 23rd, 2007

Dear Friends,

RIP Jamie Lee.

With mixed emotions to let you know that Jamie Lee died at 5:00 PM...on her birthday. She didn't think she'd make it to see another birthday and how fitting for her to leave today. We are so sad for the empty space she will leave but we are happy for her to be free from pain, to be whole, and free from the dreadful ALS. Please keep her family and her boyfriend, Tim in your prayers.

Jaime Lee Jaime Lee Jaime Lee Jaime Lee Jaime Lee
"Some of it's magic, some of it's tragic, but I had a good life all the way."
Jamie Lee - Birmingham, Alabama

1945 - 2007

"Strength for today, bright hope for tomorrow."

Lois "Tot" Schultz
(Click to meet Lois & Team Tot)

The Remarkable Story of
the Heywood Brothers
Has Captured National Attention.
Sunday, November 27th, 2006

CAMBRIDGE, Mass. – ALS Therapy Development Foundation CEO and d’Arbeloff Founding Director, James Allen Heywood, announces the sudden, accidental death of his brother, Stephen Heywood, 37.

Saturday, November 25, 12:49 PM

Dear Friends,

Friday morning at 5:30 I received the call from Wendy that I have gone to bed each night hoping would never happen. I could tell from the sound of her voice that this one was different. When I arrived, their small street was lit up with the flashing lights of two fire trucks, an ambulance, and a police car. Going inside past Wendy holding Alex in her arms and into his bedroom I found Stephen. His vent had disconnected, his lips were blue and despite aggressive CPR he looked peaceful perhaps with even a slight trace of a smile. I rode to Newton Wellesley with the ambulance driver who also grew up in Newton and remembered Stephen from other visits.

Between Wendy, his caregiver and the EMT's, Stephen had CPR for over 40 min. I don't know if it is because he forgot that he was sick or because his heart is larger and stronger than any I have ever known but it restarted. You could actually see the disbelief on the ER team's faces. You also knew that they were not sure this was a good thing because Stephen's eyes were not responding at all. They wanted to make sure we understood how bad it was but they missed Stephen's point as people often do.

Stephen would tell a joke about wanting to die a heroic death. It went something like this. There would be a fire and he would save someone but it would have be a slow fire with ramps because he would be in a wheelchair. I think he found a way to do that.

There is no blood flow to either hemisphere of his brain and he has no EEG signals. Stephen is gone, left in our hearts and in the relationships and structures he built. Stephen was in command of his world and his body at all times and never lived life on anything other than his own terms. Thursday night before bed he sent an email to Ben saying how wonderful our Thanksgiving was; it was a wonderful Thanksgiving.

Stephen has kept his body alive so that his family and friends could gather and say goodbye. As Stephen indicated he wanted to he will donate his organs to others to give them a chance at the amazing years of life that he gave us. Sometime over the next few days if it is possible some very lucky person will get his heart.

So he found his slow fire and it has ramps.


May 11, 1951 - May 21, 2006
Donna & Ava
Warrior Poet Donna Lewis
Thursday, May 25th, 2006

I just wanted to thank you for putting Mom's picture on your website. She fought a brave fight to the end, and was such an encouragement to us all. You are such an inspiration to so many people, I applaude your bravery and spirit.

Fight the good fight and Never Give Up.

Heather N. Weidman

May 10, 2006
Lakewood, Colorado
Oct. 4, 1957 - April 4, 2006
Jerry MOONUnit Beckwith
"While some promises are made and go unfulfilled,
others show the depth and truth of champions."
(Click to visit Jerry)
Shirley Tucker
Sara Lou Cisco
Keith E. Cross
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Paula Ellen Cobb
Laura Pauline Lewis
Edwin Merle Smith
John Elbert Upton
Jim Randall
Dionisio "John" Escolar
Svend Poulsen
Allison H. Adams Jr.
Brian Hall
1963 - 2002
Brian Hall

Brian's Wish is this:

To make the world more knowledgeable about ALS, a cruel terminal disease, and the effects it has on the patient, family, caregivers and friends and to help create awareness and more interest, and provide funding for research to find a cure for this terrible disease.
(Click to visit Brian)
Judy (Kuechen) Staloch
Robert Sandy Brown
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Cynthia "Peggy" Lee Geohagen
Carol June Williams Clemens
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Joseph R. Kidd
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L. Brent Schvaneveldt
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Kenneth E. Tackett
Virginia A. Chmielewski
Chris Schenkel
Sharon Merkel
Jean Ward
Bonnie L. Arnold
Kenneth M. Steinbuch
Dominic G. DeAngelis
Glenn R. Fox
Sharon F. Merkel
Robert Hoskins
Mike Hallacy
Harold E. Stevenson
Milton Ockman
Project ALS
Project ALS
(Click to visit Jenifer)

"We founded Project A.L.S. on the notion that ALS would be solved not by brilliant individuals working in isolation, but by committed aggressive teams of researchers working together. It was the American way. It was our way. It was the only way we were going to win this thing."

--Jenifer Estess

Christopher "Chris" Joubert
Roger Parker
Felix A. Jacques
Robert Andrew Baker
Joseph C. Liberto
James Theodore Lindberg
Eunice Hall
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John William Ravenhorst
Rocco A. Mancini
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Seth Carey
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Eugène Zamor
Sheila "McSalmon" Kelpin
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Herb Daigneault
Sue Zuckerman
Greg Goldberg
Will Hubben
Rob Senecal
Morrie Schwartz
"All the love you created is still there.
All the memories are still there.
You live on -- in the hearts of everyone you have touched and nurtured while you were here.

Death ends a life, not a relationship."

Morrie Schwartz

Rose Marie
Doug Eshleman
Maarten Duijndam
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Joe aka YamaHawg
Dee Holly
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Scott Co
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Ron Gayman
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Warrior Poet Luc Blais
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Patricia Kosmach
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"Winning isn't everything...But wanting to is."
Jim "Catfish" Hunter - Former New York Yankee Great
(Click to hear Catfish)
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Stewart B. Branam
Toichi Toyofuku
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Joyce Zito
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Patricia Martinez
Sean Bowler
Clarence Willard Etters Jr.
Rick Wilkinson
Julia Griffin Otis
Marilyn Elizabeth Osborn
Jim Daniel Himelic
Sally A Robson
John Russell
Raymond M. Kutil
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Carol B. (Bryam) Kauppila
Christopher Wells Hobler
Carol Joyce Emerson
Reba Laverne Wiggs
Fred Duncan
Samuel Edward Ellis
Marda Maynard
William H. Brandenburg Sr.
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David Filer
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Jorge Eduardo
Robert L. Jones
Anna Hubbard Doherty
Thomas Wade Harris
Craig Hegmann Merchant
Samuel Edward Ellis
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Robert M. Landman
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Alvin Joseph Daunheimer
Ethan Oliver
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Diane Peters
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Eva Jeannette Parker
Johnny M. Tyler
Mary L. Stewart
James L. Byard
Nazir Ali
Mary L. Vest Drum
James William Beal
Jose A. Troche
Professor Ron Shaffer
Keith Schneider
Annabelle Stanley
Russell R. Major
Scott Hardman
Doris Evelyn Carpenter
Lt. Col. Milton E. Robarts
Fran Delaney
Claudius Richard Hobbs
Robert "Bob" Humphrey
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V.J. Smith
John H. Stamps
James Malcolm Strong
Gayle Susan Wolfe
Edward J. Zdobylak
Bridget "Dee" Mullen
John F. Malley
Margaret L. Murray
James A. Bedard
Gary Ernest Sommargren
Robert L. Eggleston
Thomas Collier
Nicolette F. Tal
Mark Richard Pawlak
Robert Findley Walker Sr.
Irvin S. Eicholtz
Laura Mae Foy
Olen Lankford
M. Joseph "Joe" Abel
Stanley Sadie
Dennis "Sailor" Johnston
Norman Martensen
Jérôme Jamais
Robert Louis Wierman Jr.
Rodrigo Hinojosa
Garry R. Kersey
Pauline Steinmetz Speelman
Richard Bernard Lutz
Donald J. Brohard
Judith Mary Fay (Judy) Duncan
Brian Mcinerney
Robert J. “Bob”Rehkopf
Walter Mcfadden
Ronald Leslie Wilson
Judith (Judy) Anne Gill
Robert Tiedgen
Alexa R. Good
James F. Landis
Lonnie Easton Trotter
Coral J. Ashby
John O'Leary
Ardys Elaine Hughes
Fay Caley
William F. “Frank” Roberson
William Gower
Bill Graham
Cheri Blackerby
John Negroponte
Sherry Tomb
John Sulkowski
Norman A. Lockman
Ralph Williams
Alan Randall
Bob Heath
Robert H. Frericks
Jeanne D. Lee
Hope D. Mata
Kelly H. Cote
James Letts
Walter Lloyd
Robert Hamm
Sam Wingard Sr.
Brian Dickinson
David S. Hypes
William R. Behnke
David T. Zawadzki
Ian Stevenson
Teresa D'Urso
Thomas Alexander
Duane Bartrug
Patricia Northrop
Timothy Lewis Scott
Charles Leroy Johnson
Sean G. Manion
Anthony R. Capaldi
Linda Margarita Smith
Orene Renie Madonna
Carroll Edmonds Deneane "Dee" Chiplock
Ricardo Guzman Sr.
Albert Edward Millard
Regina Bisson
Brian Wojtkunski
Heath Millward
Lorraine (EZ) Knitter
Dvirginia Jessup
Darlene R. Welch
Barbara Sue Lawrence
Michael J. Yost
Duane E. Bartrugick
Donna G. Contois
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Anna Telander
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Walter A. Reiter
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Luis S. Lozada
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Conrado Baes
Noma Russell
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Mary Jane Gentry
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Lynn C. Young
Mary Jo Eicher
Polly Mozingo Suiter
Holly W. Butler
Nora Christina Colleran
Richard Saul
Caroline J. Gardiner Esq.
Grady H. Moss
Robert Hearin
1958 - 2007

Ronald Yehl Rice
Robert E. Bunnell
Wayne M. Rich
Wes Christensen
Foye Little Thornton
Sandra Haysen Kirby
Josephine F. Carruba
Rodrigo "Rudy" Hinojosa
Mary "Jackie" George
Larry D. Schultz
Barbara Howe
Daniel Joseph Czachor
Albert “Al” Hartel
Laurie Lynn Voyles Gandy
Lane Smith
David Gerald "Jerry" Steinpres
Robert Maxwell Croozier
Joseph "Tony" Blandino
Audrey Sachleben
Richard Loren Johnson
Steve Dirksen
Arlene Carley
Harold Alwin
Barbara Macdonald
Julia Otis
Robert G. Karle
Jimmy Mcdonald
William Lovering Waldron Jr.
Jim Cahill
Richard E. Mcpherson
James A. Ketterer
Paul Rossetto
Alfred Even Johnson
Robert Mcneill Sr.
Michael Hinsberger
Dr. Garry F. Rust
Suzanne Seidel
Nevie E. Mcarthur
Don Williams
Orville R. Gallino
Lowell Smith
Michael W. Donnelly
Dick White
Michael Butler Laughery
Jackie Williams
Robert Schlesinger
Dennis Arthur Knudson
John "Jack" Earl Hamilton
Robert G. "Bob" Karle
Alex Dechief
Larry David Peterson
Ian Davies
Holt A. Murray Jr.
Kevin Heidrich
Judy Cooper
Robert Fulford
Donald F. Jarrell Jr.
Lucy Jane Buchanan
Robert Bob Mayes
Denny White
Brian Thomas Wolfe
Walter Antle Wall
Michael R. Hubbell
Sharon Ambroso
Roderick Douglas Macleod
John F. Malley
Robert Joseph "Bob" Marsh
Victor Mezzo
James Clare Warner
Robert R. Henderson
John Frederick Piquette
Doyle Wade Mcclennen
Sarah Childs-Grebe
Jean (Bradley) Stockwell
Albert Todd
Jason A. Davis
Helen Elizabeth Edmisten
J. Carl Coleman
Bill Singer
Patricia Hamilton
Stephen L. Proctor
Maureen Burke-Paolantonio, RN
Scott Fraza

Ezra Charles

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Jacob Javitz

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